When Sutton was just 5 days old, her parents, Brittany and Jeff, received a call from their pediatrician: their daughter had cystic fibrosis (CF). The genetic disorder can cause life-threatening lung infections, obstruct the pancreas, and stop natural enzymes from helping the body break down and absorb food.
Just an hour after the diagnosis, the team from the Children’s Cystic Fibrosis Center called to help the family deal with the overwhelming news that their precious daughter would face a lifetime of health challenges. The Burnetts traveled to the CF clinic the same day. During their visit, Brittany and Jeff met with the entire team—the physician, nutritionist, therapist and nurses—who would serve as their support system. Their physician assured Brittany and Jeff that the team at Children’s would be there for them no matter what.
Along with the pressures of having a newborn, Brittany and Jeff had to learn how to keep their daughter growing stronger every day. They make sure Sutton, who just celebrated her 1st birthday, stays healthy by relying on her many medications, breathing treatments and a respiratory therapy vest.
As Sutton gets older, she will have to wear the vest for 30 minutes twice a day to help control her disease, eventually learning to manage the disease on her own. Until then, her parents will work to keep her healthy day in and day out. While there is no cure for CF, the Burnetts remain hopeful, and Children’s will be with them every step of the way.
Register today for Dance Marathon 2015 so you can meet and dance with Sutton!
Everybody meet Grant! He’s one of our wonderful Miracle Kids who will be at Dance Marathon on March 7th this year. Read more about his incredible story:
On January 11th of 2010, after what we thought was a normal and healthy pregnancy, my husband, Heath and I gave birth to our beautiful second son, Grant. Immediately after his birth our hearts dropped as we realized that something was horribly wrong. Grant was not breathing and was quickly rushed away from us before we even were able to see him or touch him. Grant had a life- threatening condition called Congenital Diaphragmatic Hernia. Essentially, his diaphragm, the muscle that separates his abdomen from his chest cavity failed to fully develop in utero thus allowing all of the contents of his abdomen to travel into his chest cavity. Grant’s stomach, colon, intestines and spleen were growing on top of his left lung. He was immediately placed on life support and transported by the Children’s Healthcare Neonatal transport team to begin our journey at Egleston hospital.
Here he was placed on morphine, methadone, norcuron to keep him completely paralyzed and literally dozens of other medications and machines to try to keep this 5 lb baby alive. The next two weeks were a roller coaster. We found out that over half of CDH babies don’t make it out of the delivery room, much less make it thru surgery and that statistic haunted us. Every day seemed to be one step forward, two steps back as they slowly tried to wean him off his oscillating respirator in preparation for surgery. At 8 days old, Dr. Meghan Durham performed Grant’s de- hernia surgery to repair his diaphragm, pull his abdominal organs into place while somehow holding two petrified parent’s hands at the same time. All of the Doctors and Nurses at Egleston were with all us every aching step of the way. They were a source of knowledge and assurance. They became friends we could cry to or speak with and have since become family that we love and owe everything to.
Over these heartbreaking weeks at Egleston, Grant was painstakingly slowly taken off his respirator and put on oxygen; he opened his eyes for the first time, grasped our fingers for the first time and little by little began to heal. Today, Grant is healthy, beautiful and full of life. He is truly a miracle- thanks to the many prayers and support of our friends and family and the amazing care he received at Children’s Healthcare of Atlanta. We are so thankful for what Children’s Healthcare of Atlanta did not just for him, but for our whole family.
Movies for Miracles is happening THIS WEEK! Don’t be a cotton-headed ninnymuggins and forget to buy your ticket…do it now online or Tuesday November 4th on Skiles from 11-1 and we’ll see you on Tech Green at 7 for some Christmas cheer!
We are thrilled to announce that the theme for Dance Marathon 2015 is….Harry Potter! Thanks to everyone who stopped by Skiles today to grab some butterbeer and take a picture at Platform 9 3/4! Look for your picture in our album of pictures on our Facebook page. Also check out our theme reveal video here, put on by our amazing Exec members!
Sign up for Dance Marathon today!
The sign up link for Dance Marathon 2015 is live and open for business! Check it out here and start fundraising today!
We are thrilled to announce that our application for committee members is now OPEN! Check out our ‘Get Involved’ tab above to learn more about how you can be a part of this amazing experience, and take a glance at some highlights from last year here.
Click here to apply today!
Get excited for Dance Marathon 2015…we can’t wait to see your application!
Do you want to do more for the children at Children’s Healthcare of Atlanta and make GT For the Kids and Dance Marathon better than they’ve ever been before? If so, apply here to become part of our FTK Executive Board. There are twelve different positions with different skill sets, so we’re sure you’ll be able to find one that fits you!
Hey Dancers, we’re only three days away from the big day! Its time to hit your fundraising goals and make a difference for the kids! Here are some tips that can help you fundraise:
1) Get the word out:
A lot of your family and friends may not know that you are part of this amazing organization. So the best way to start is to tell them!! Send emails and personalized letters to friends, family, teachers, old coaches etc. Another great tool is to use social media connect with all these individuals.
2) Make it Personal:
Ask yourself “Why am I raising money for CMN?” and “Why am I part of this movement?”
Iterate that to your family and friends- they will want to help you if they know you’re serious and passionate.
3) Increase your goal!
If you go into your donor drive, you can manually change your goal amount. People want to help you achieve something.They are less willing to help you reach a goal if you’ve already reached it, so once you get closer to your amount on donor drive- consider moving the number up even more!
4) Take advantage of the campus by canning!!!
We have a number of sporting events around campus this semester
5) Do you like attention?
If so, then tell everyone you’ll do something crazy to get donations!!! For example… Wear a dress to Dance Marathon (If you’re a guy) or shave your head.
6) Keep up with the people that help you.
Send Thank you letters to everyone who has helped you reach your goal
7) Offer to do something in exchange for a donation!
Get excited, and happy dancing!
Sigma Chi & FTK Pie-athalon is the 1st annual fun run For the Kids! Have you every wondered whether you could run on a full stomach of pie? Well, wonder no more. On the morning of November 24th, the whistle will blow and you can race to be crowned as the first Pie-athalon champion! Or you and three friends can sign up to take on the challenge. What do you have to do exactly..? Run. Eat. Run. And that is it! Sign up now by clicking here or visiting the “Get Involved” Tab.
We are so excited to introduce a great team of students to this year’s FTK @ GT! Congratulations to our new members!
Be on the lookout for Dance Marathon Registration to open soon!